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Call to Action for Transgender Endometriosis Health Rights & Research

The needs of transgender people living with endometriosis are particular acute right now and must remain a priority for advocacy groups. Sharing stories is part of the solution, but more needs to be done to sound the alarm to healthcare researchers and practitioners in particular, in order to specifically address the unmet needs of one of the most vulnerable populations within the global endometriosis community.

As emerging research demonstrates, there are also important differences in the ways that endometriosis may manifest in transgender, nonbinary, intersex, and other gender diverse populations. For example, at least one research team has found a higher incidence rate of endometriosis – %25.4 – in transgender people,

As we mentioned in another post, it is also our responsibility to learn how medications commonly prescribed for transgender people in transition, may affect the development of endometriosis or interact with other medications for endometriosis. For example, there is emerging research demonstrating that both testosterone and estrogen therapies for transgender individuals could exacerbate and even upstage endometriosis.

In several upcoming interviews on these issues, you’ll hear from several trans men with endometriosis, about particularly harrowing experiences of finding out (after the fact) that their healthcare providers were completely unaware that testosterone treatments could potentially worsen their endometriosis symptoms to such an extent, that emergency surgery and hospitalization is often required.

Even some endometriosis specialists are ill-informed about the various ways endometriosis may present in transgender patients. Some even presume that testosterone will “shrink” or lesson the symptoms of endometriosis and are often in disbelief that the opposite can and does occur.

We’ve also heard very disturbing cases, of transgender individuals with endometriosis being denied medical care. Under federal and state laws, it is unlawful to deny care to a patient based on their gender, race, sexual orientation, or health status.

Unfortunately, these unlawful forms of discrimination are still occurring. Check out this resource from the National Center for Transgender Equality, if you would like to work with advocates to help protect your health rights.

As a community, we must do everything we can to help call out these flagrant civil rights violations and work toward securing urgently-needed policy changes to ensure that all endometriosis patients are protected from these unlawful actions.

This is why we’re partnering with the global community of endometriosis specialists & researchers, to initiate an urgent call to action to educate practitioners through CME courses and allocate resources to address these unacceptable gaps in knowledge that are causing so much preventable harm.

Some of our efforts to help drive forward better care and research for transgender people affected by endometriosis will be covered in this year’s 11th Annual EndoMarch & Virtual Endometriosis Conference, which you can register for here, or view here on our EndoMarch YouTube Channel if registration has already closed.