My name is Maria Giovanna Melarosa. I was born 41 years ago in Catania Sicily, Italy. Since a young age, I was always sick and in pain. I would struggle with nausea, dizziness, and no doctor could tell my parents what was wrong with me. Actually, they would say it’s
Endo Stories
Meet Lily: Teenage Endo Warrior
Hi, I’m Lily and I’m 18 years old. I am the 1 in 10 women, and one of the 200 million women worldwide affected by Endometriosis. My journey with Endometriosis began at the age of 14. I began struggling with an array of symptoms including immensely painful periods that were
An Endometriosis Patient Shares Her Story
My name is Arolyn and I was lucky to intern with Worldwide EndoMarch for the past six months. I met so many endometriosis patients and impacted individuals during this experience. It has really inspired me to continue advocating for patients all around the world for women’s health, most specifically, patients
Advocacy for Endometriosis is Advocacy for Women’s Health
Guest post by Arolyn, Worldwide EndoMarch Intern Hello there! My name is Arolyn. I am an intern with Worldwide Endomarch as an MPH graduating candidate for the past six months. Throughout my time here, I was able to communicate and listen to endometriosis patients sharing their struggles with an intense
Management of Chronic Pelvic Pain
Guest Blog Post by Mandy Klumpkens Endometriosis is a complicated whole body disease. Chronic pelvic pain is always present but may vary in intensity over time. Pelvic pain, including the ‘killer cramps’, may occur out of nowhere and can last for a certain period of time. On the other hand
Called Upon the Endo Belly
This article was originally posted on No, Thanks Endo, a website created by Maya Rodda. She has given us permission to republish it on our blog. Check out Maya’s website or follow her on Instagram! If you have endometriosis, you have most likely heard the term “endo belly”. And if you
Endometriosis – Quality of Life and Psychosocial Distress
Guest Blog Post by Mandy Klumpkens When our brain is tired of coping with too many things at once, psychological distress often comes with feelings of vulnerability and fear that eventually can become disabling. Symptoms that are linked to this mechanism are depression, anxiety, extensive worrying or social isolation. However,
Tips For Your First Endometriosis Laparoscopy
Having your first laparoscopy is scary. For one, this is going to be where you find out if you have endometriosis or not. And two, if you haven’t had surgery before it can be nerve-wracking. I mean hell, even if you have had surgery it’s always scary. I’ve had 4 laparoscopies for Endometriosis so far, yet I’m always a little nervous. That’s why I’ve come up with this checklist to help other women know what to expect on surgery day, what to bring with them, and what to do afterward at home and at post-op.
Turkish Medical Student, Edzhem Tombash, on Observing Dr. Camran Nezhat
The opportunity to observe Dr. Nezhat for 2 months was an important point in my life. Prior to this, I had heard about endometriosis a few years ago when I recorded patient education videos with an OBGYN in Turkey. Even though I found it very interesting, the estimated incidence of 1 in 10 seemed unrealistic.
In Loving Memory of Elise Elizabeth Travers
It is with profound sorrow that we announce the passing of Elise Elizabeth Travers, noted philanthropist, endometriosis advocate and Board Member of Worldwide EndoMarch and Worldwide Endometriosis Day. She also served as President of the New York chapter of Worldwide EndoMarch. Ms. Travers passed away peacefully on September 4, 2019 after an extended illness.