At the age of 16, I first sought medical care for abdominal pain and discomfort. Despite tests revealing normal results, I was informed that women sometimes experience pain. Throughout the years, I adjusted my lifestyle, incorporating exercise, modifying my diet, sitting only when necessary, and relying on painkillers—anything to cope
Endo Uprising Blog
Share Your Story: Maria Giovanna Melarosa
My name is Maria Giovanna Melarosa. I was born 41 years ago in Catania Sicily, Italy. Since a young age, I was always sick and in pain. I would struggle with nausea, dizziness, and no doctor could tell my parents what was wrong with me. Actually, they would say it’s
Meet Lily: Teenage Endo Warrior
Hi, I’m Lily and I’m 18 years old. I am the 1 in 10 women, and one of the 200 million women worldwide affected by Endometriosis. My journey with Endometriosis began at the age of 14. I began struggling with an array of symptoms including immensely painful periods that were
Endometriosis Education in Schools
As an endometriosis patient, you keep hearing that 1 in 10 women are diagnosed and suffer with endometriosis. Again, 1 in 10. Researchers believe that there are even more women than the 1 in 10 already diagnosed who may be suffering from endometriosis. It is assumed women may be misdiagnosed,
An Endometriosis Patient Shares Her Story
My name is Arolyn and I was lucky to intern with Worldwide EndoMarch for the past six months. I met so many endometriosis patients and impacted individuals during this experience. It has really inspired me to continue advocating for patients all around the world for women’s health, most specifically, patients
Advocacy for Endometriosis is Advocacy for Women’s Health
Guest post by Arolyn, Worldwide EndoMarch Intern Hello there! My name is Arolyn. I am an intern with Worldwide Endomarch as an MPH graduating candidate for the past six months. Throughout my time here, I was able to communicate and listen to endometriosis patients sharing their struggles with an intense
Management of Chronic Pelvic Pain
Guest Blog Post by Mandy Klumpkens Endometriosis is a complicated whole body disease. Chronic pelvic pain is always present but may vary in intensity over time. Pelvic pain, including the ‘killer cramps’, may occur out of nowhere and can last for a certain period of time. On the other hand
Called Upon the Endo Belly
This article was originally posted on No, Thanks Endo, a website created by Maya Rodda. She has given us permission to republish it on our blog. Check out Maya’s website or follow her on Instagram! If you have endometriosis, you have most likely heard the term “endo belly”. And if you
Endometriosis – Quality of Life and Psychosocial Distress
Guest Blog Post by Mandy Klumpkens When our brain is tired of coping with too many things at once, psychological distress often comes with feelings of vulnerability and fear that eventually can become disabling. Symptoms that are linked to this mechanism are depression, anxiety, extensive worrying or social isolation. However,