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Endo Explained_ Ask the Experts-18

Endo Explained_ Ask the Experts-18

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Text ENDO to 66866, to register your school & join the #TeachEndoNOW! nationwide call to action, to teach endometriosis in every high school, medical school, and nursing school in the U.S. by 2020.

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wwendomarch

This nonprofit is leading the way in research for

This nonprofit is leading the way in research for extra pelvic endometriosis in particular. Check out their latest study for which they are recruiting for participants:

Repost from @extrapelvicnotrare
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I invite persons with SURGICALLY CONFIRMED endometriosis of the diaphragm or chest cavity to participate in an anonymous, online research survey. The purpose of this research survey is to collect and analyze the experiences of persons with surgically confirmed endometriosis and interactions with medical entities from symptom onset (and persons with asymptomatic disease) through surgical diagnosis. This survey is Institutional Review Board approved (exempt status). Survey is open to worldwide residents but you must be +18 yrs of age; fluent in English and diagnosed through any of the following: Laparotomy, Laparoscopy, Combined Laparoscopy/VATS or isolated VATS. Survey is open August 1st through October 31st, 2021. Link to Research Survey in Bio. #Endometriosis #DiaphragmEndometriosis #ThoracicEndometriosis #ExtrapelvicEndometriosis #Diagnosis #Laparoscopy #VATS #NonProfit #CrowdSource #PatientsVoice #PatientExperience #NonProfit

Follow @endostats for exceptionally well curated r

Follow @endostats for exceptionally well curated research summaries on Endometriosis. Here’s one highlighting news regarding endo and links to some cancers (emerging research and/or confirmations of previously established links).

Stay tuned for upcoming literature reviews by our team of Nezhat-EndoMarch Pre-Med Interns, who are exploring this subject as part if their research projects. @grace.mcphaill @endometriosis_ashleycawood @elifpolats

Repost from @endostats
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Cancer associated endometriosis is rare but it’s important to know it exist. Women and gender minorities with endometriosis are 4X more likely to develop EAOC which can present 20 years earlier than de novo ovarian cancer. Meta uses machine learning to analyze and map millions of medical research papers, protocols, and data. Explore science in real-time. Science moves fast. Now you can see where it’s going. #Endometriosis #Cancer

Some of the Signs and symptoms of Ovarian Cancer o

Some of the Signs and symptoms of Ovarian Cancer overlap with some Endometriosis symptoms as well. Yet so many millions continue to be ridiculed or dismissed for bringing these issues up with their healthcare providers, leading to preventable deaths in both group. Our Nezhat-EndoMarch Pre-Med student interns are working on a campaign as we speak to help change these unacceptable institutional failures . @elifpolats @endometriosis_ashleycawood

Repost from @tinaswish
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#OvarianCancer can be deadly if not found at an early stage. This is why identifying symptoms such as pelvic pain, bloating, upset stomach, feeling full quickly and frequent urination is so important.

Help Tina’s Wish spread awareness by sharing this post. To learn more visit the link in our bio.

#KnowEarlyKnowHope #GynecologicCancers #TinasWish #EndWomensCancer #TinasWishisMyWish #KnowCancer #EmpowHer #BRCA

💛 Repost from @spoonies_united • The non-di

💛

Repost from @spoonies_united
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The non-disabled have no right to judge or shame is. Our community will always understand and support you.- Maggie💜 #disability #disabilitypride #disabilitypridemonth #disabilityawareness #disabilityrights #spoonielife #warrior #chronicpain #invisibleillness #autoimmunedisease #chronicillness #butyoudontlooksick #spoonie #spoonies #spoonies_united

How many more? How many more petitions and march

How many more?

How many more petitions and marches in the streets must the global Endo Community organize , year after year , before the responsible governmental officials, legislators, and public health institutes heed our urgent pleas on mandating endometriosis education in schools so that girls can have a fair chance to receive timely medical attention if needed?

How many more generations will be severely harmed by the insidious gender discrimination that so plainly lies at the root of such spectacular public health policy failures we see perpetuated decade after decade?

While many Endo organizations around the world have made great strides in this area, here in the U.S the federal health institutes that are supposed to protect the public are largely MIA. If we as a nation can support missions to Mars and back , what possible excuse is there to neglect 10 -12 million of our own people , right here on Planet Earth ? #TeachEndoNow

Thank you @endometriosis_sisterhood for sharing this post .

Repost from @endometriosis_sisterhood
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How upsetting to read that this many girls skip classes because of their period 😢.These results come from a online survey of 4202 teenagers and young women in Australia between the ages of 13 to 25.This is why raising awareness and raising funds is so important for our fellow endosisters 💛💛💛#endometriosis_sisterhood #endometriosisawareness #endometriosis #endo #endometriosissurgery #endowarrior #endometriosiswarrior #endometriosisuk #endometriosissupport #thisisendometriosis #endosisters #endosister #endosistersunite #endosistersunited #endowarriorqueens #endometriosis💛 #anxietysupport #disease #mentalhealth #ladieswithendo #endometriosisjourney#endometriosisresearch #endometriosisvenezuela #endoflareup #endobelly

Looking forward to this !! Repost from @extrapel

Looking forward to this !!

Repost from @extrapelvicnotrare
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Check out this gig happening this Monday, August 1st. #Repost @endometriosissurgeon_india with @make_repost
・・・
Have you ever wondered why endometriosis patients become patient advocates ? They have seen it all, gone through years of misdiagnosis, delay in diagnosis, normalisation of symptoms, disbelief and the psychological impacts of this disease. They don't want others to suffer and are trying their best to help others get to the diagnosis at the earliest.

Join us this Sunday 8 PM IST and 10.30 AM EST as we discuss Abdominal Wall Endometriosis (scar endometriosis and primary umbilical endometriosis) and "What it takes to be an endometriosis advocate" with super awesome patient advocates Kate Donahue and Shilpa Rao

Link to join the group in bio FB a group Endocrusaders
https://www.facebook.com/groups/312050149793998

#endometriosis #endodiet #pcos #chronicillness #endowarrior #endometriosisawareness #chronicpain #infertility #womenshealth #fertility #fibroids #endometriosiswarrior #pelvicpain #ttc #mentalhealth #fibroid #miscarriage #endometriose #apollocradle #apollohealthcity #apollohospitals
#adenomyosis #gynaecologistinhyd #excisionsurgeryindia #LAPEX #endometriosisindia #endometriosissurgeryindia #endometriosissurgeonindia

Meet the speakers for ep. 10 of Endo Explained: As

Meet the speakers for ep. 10 of Endo Explained: Ask the Experts!

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The Rosemond family lives in LA, but is originally from Miami, FL. Since Alexis was 12 years old, she and her mom consulted over 10 different gynecologists in desperate search of answers for relief to her constantly severe pelvic and abdominal pain that had taken hostage of her life. “Everything looks normal, I’m not sure what is causing your pain. Check with your primary doctor.” These words became the echo of her life while she would be bent over in excruciating pain more days than not, unable to do things normal teen girls can do. Her mom would cry, helplessly watching as she would scream in pain so deep that she could barely put into words to describe to her what she felt. When Alexis and Maria began to do their own research, they learned about endometriosis for the first time. Their journey continued until they finally reached freedom through Dr. Nezhat at the age of 27.

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Lily has struggled with Endometriosis since the age of 14. On this challenging journey to find answers, be diagnosed, and receive appropriate care, her family has been there with her every step of the way. Her parents Karen and Ed and big sister Jenna have supported her through the ups and downs of dealing with the medical system, the physical and emotional toll of being in pain, and working towards her life goals in spite of having chronic illnesses. Educating themselves on the disease and learning how best to support Lily has been an ongoing process. They hope to help other families navigate this impactful disease.

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Hear more from Alexis, Lily, Tayler, and their families on Saturday, July 31 at 10am PT / 1pm ET.

Registration link in bio!

#EndoExplained #AskTheExperts #Endometriosis #ForwardWeGo

Love this!! Thank you @justdrju for inspiring so m

Love this!! Thank you @justdrju for inspiring so many with your words of wisdom !

Repost from @justdrju
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Today is my last day of work, and I’m not gonna lie, it’s bittersweet😢. This time 3 years ago, I had just been denied admission at every med school I applied to and had to reconcile with the fact that I was unprepared. Who would’ve thought that in the time that passed, I would take my MCAT 2 more times, get a master’s from Case Western, make some lifelong friends, get multiple acceptances from Medical schools and work as a coordinator on the Pfizer Covid-19 vaccine trial. This pic is for anyone who has ever been told no or had their dreams delayed. Trust that no one can hold you back, not even yourself. If I’ve learned anything, it’s that a star 💫 will always shine, and that a “no” is usually a “not yet”🤞🏾. Keep going, it gets better.

This post is everything. Thank you @endounites fo

This post is everything. Thank you @endounites for all you do to support and inspire Endo Survivors the world over.

Repost from @endounites
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Don’t give up! There’s some purpose hidden within that pain. You might not see it now but someday the pieces will connect ✨

Brave ENDO Fighter sharing her story . We stand in

The EndoMarch Pre-Med Internship is in full swing!

The EndoMarch Pre-Med Internship is in full swing! Congratulations to all the students and future endometriosis specialists who have had a chance to observe @camrannezhatmd in the OR and learn more about endometriosis! 🎗#TeachEndoNow #PremedInterns

REPOST FROM @be.with.z

Day 1 of OB/GYN surgery shadowing is done ✅

It was a true privilege being able to watch Dr. Nezhat, the inventor of lacroscopy (a minimally invasive way of inspecting the abdomen/ abdominal cavity), remove endometrioma and even perform a hysterectomy! ♀️

My favorite part was having a friend @christineroselle by my side and how absolutely encouraging and friendly Dr. Nezhat and his team were!

#berkeleygrad #premedlifestyle #premedstudents #futuredoc #roadtomd #firstgen #premedselfcare #mindfullife #intentionsetting #selfreflections #medicinewoman #surgeryshadowing #endometriosis #hysterectomy #laproscopy #shadowing

Webinars are back THIS SATURDAY! Register for ep.

Webinars are back THIS SATURDAY! Register for ep. 10 of "Endo Explained: Ask the Experts" where we'll be discussing the challenges facing parents of adolescents with endometriosis!

We'll be joined by 3 patients and their parents who will be sharing their experiences navigating through finding a doctor, diagnosis, treatment, day to day life, and more!

Hosted by Dr. Camran Nezhat.

Click the link in our bio to register!

#EndoExplained #AskTheExperts #ForwardWeGo #Endometriosis

Thank you to the EndoMarch volunteers, supporters,

Thank you to the EndoMarch volunteers, supporters, patients, and families for pushing for more endometriosis research. Nezhat Family Foundation on behalf of EndoMarch has given grants to some of the most prestigious universities in the country to do research on endometriosis.

Dr. Michael Diamond from Augusta University -- Medical College of Georgia is a recipient of one of these grants!

If you are interested in making a contribution to Dr. Diamonds's research, please contact Diego Vasquez at divazquez@augusta.edu.

#ForwardWeGo #EndometriosisResearch #EndoMarch

Incredible! 💛 Repost from @endometriosisaustra

Incredible! 💛

Repost from @endometriosisaustralia
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Aussie Aussie Aussie!

One of our ambassadors, the wonderful Emily Seebohm will be representing Australia in her fourth Olympics in Tokyo this year!

We are so proud and can't wait to cheer her on.

Join us in wishing her the best of luck by commenting with a 💚 or 💛!

Learn more about her achievements via the link in our bio!

@emcbomb
#Endometriosis #EndometriosisAustralia #tokyo #tokyo2020 #olympics #ausolympicteam #emilyseebohm #emcbomb #cbomb

Love this team & they are recruiting now for addit

Love this team & they are recruiting now for additional students from UCLA to join ! 💛

Repost from @endomarch_at_ucla
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Continuing on with introducing our committee heads for the 2021-2022 school year🤩

Next up is our Vice President, @coffeeandkimia 🎗

Still looking for a few more people to fill leadership positions, as well as general members of the club! Spread the word, and if you are interested, the interest form is in our bio💛
•••
#endometriosis #endometriosisawareness #endomarch #ucla #uclaclub #studentrunorganization #womenshealth #reproductiverights

PREMED STUDENTS ON A MISSION TO CHANGE THE WORLD,

PREMED STUDENTS ON A MISSION TO CHANGE THE WORLD, ONE PATIENT AT A TIME

Congratulations to #NezhatInterns, Sahana S., Grace M., and Sai B., who just completed their very first week of shadowing surgical pioneer, Dr. Camran Nezhat & his team, as part of the Nezhat-EndoMarch Internship for Pre-Med/Pre-Health Undergraduates,

We hope this unique Patient-Premed-Physician Partnership will help address the global #Endometriosis Specialist shortage crisis, by inspiring a new generation of future healthcare professionals to consider specializing in Endometriosis, or at minimum, complete the program with a greater understanding of one of the most urgent yet ignored public health crises of our era.

For updates on this mission, follow: @camrannezhatmd @wwendomarch

And big shout out to Dr.Nezhat’s team members
Dr. Azadeh Nezhat @janellemjackmanmd
Dr. Agarwal , Dr. Lee and all Fellows & Ali & Sandy

And big thank you as well to all of the Class of 2021 #PremedStudents #NezhatInterns , including

@endometriosis_ashleycawood
Hema B.
Abby P.
@kk_endo_warrior_advocate @avictorofjoy

And first OR rotation
@saibyri
Grace M. and Sahana S.

You can follow @endo.of.an.era for great original

You can follow @endo.of.an.era for great original works like this post and an incredibly supportive team, too. 🥰

Repost from @endo.of.an.era
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If you look closely, can you see the footprints are different shades? Individual but still part of the same colour group, yellow (Endo) Purple (Adeno).

Every story matters, they are all individual and you guessed it... are VALID.

Not everyone diagnosed with Endometriosis had a surgical diagnosis. Let's accept this in the same way that not everyone with Adenomyosis has had a hysterectomy for diagnosis.

Whilst surgery is classed as the definitive diagnosis for Endo not everyone is suitable for surgery.

Even following surgery and biopsy please see the following quote from NICE Guidelines:
'negative histological result
does not exclude endometriosis'

The same way that the stage of Endo doesn't define how debilitating it is for you.. reasons for, against, number of or type of surgery is individual and again do not define your pain and the validity of your story.

#endo #endometriosis #adeno #adenomyosis #adeno
#endothemyth #acknowledgeadeno
#chronicconditions #inclusive #spoonie #endowarrior #adenowarrior #chronicconditionawareness #itsmorethanabadperiod

Thank you to the EndoMarch volunteers, supporters,

Thank you to the EndoMarch volunteers, supporters, patients, and families for pushing for more endometriosis research. Nezhat Family Foundation on behalf of EndoMarch has given grants to some of the most prestigious universities in the country to do research on endometriosis.

Dr. Alicia Smith from Emory University a recipient of one of these grants!

If you are interested in making a contribution to Dr. Smith's research, please contact Susan House at Shouse2@emory.edu.

#ForwardWeGo #EndometriosisResearch #EndoMarch

Fantastic news, made possible by advocates speakin

Fantastic news, made possible by advocates speaking up and working together !

Repost from @ohmmrx
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🙌 Amazing news! 🙌

Official guidance for UK healthcare professionals fitting IUD contraceptive devices (AKA the coil) has been updated after a campaign by @munchetty_naga and @mscaitlinmoran to raise awareness of the pain suffered while having the procedure.

After Naga had the procedure, she at first thought she must be an anomaly due to the sheer level of pain she experienced as they fit the coil, but luckily posted a survey on social media in which 1,300 women took part and shared their stories of painful fittings with an absence of pain relief 😓

We probably all know someone or are someone who has had the coil fitted and gone on to tell the horrible gory tale… As a procedure that’s not only used for contraception but as one of the frontline treatment options for period pain, it’s even more outrageous that no pain relief is used during the procedure or that women are not informed about how excruciatingly painful it is by doctors to help inform their decision.

Until now! Isn’t it so amazing what we can achieve when we speak out 💪

We’ll always be here to help give women and non-binary people affected by these issues a voice 🧡

#menstrualhealth #contraception #coppercoil #coil #thecoil #IUD #theimplant #menstruationmatters #menstruation #periods #periodpain #painrelief #pain #painmanagement #ohmm #womenshealth #nonbinary #trans #womensrights #healthcare #news

Meet the EndoMarch Team! Hi! I’m Lily Kupa. I'v

Meet the EndoMarch Team!

Hi! I’m Lily Kupa. I've been a patient of Dr. Camran Nezhat since the age of 17. I struggled with symptoms of endometriosis starting at the age of 14, and was dismissed and belittled by doctor after doctor. I was told it was “in my head” until I finally met Dr. Nezhat who confirmed my diagnosis and performed surgery on my stage IV Endometriosis. I wanted to give back by becoming a volunteer for the Worldwide EndoMarch. This nonprofit has given me the opportunity to take my power back and allow my voice to be heard. Spreading awareness about endometriosis and the power of self advocacy in a challenging medical system has become my passion. I want to spare others what I went through by sharing my story and providing information about Endometriosis. The trajectory of my life has continuously changed as I have over 15 medical conditions. I had to take a year off of high school and a year off after high school. I am proud to say that I will be studying health science at Northeastern University this fall. I want to make a change in the way people are treated, listened to, and cared for in our healthcare system. Thank you Worldwide EndoMarch for giving me a voice to begin my journey.

#ForwardWeGo #EndoMarch

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